Outrun the Odds

This fall, I’ll be lacing up for the 2025 Berlin Marathon, a dream for any runner, but for me, it’s something much deeper. Every mile is a step toward visibility, community, and action for those living with rare neurological diseases like Neuromyelitis Optica (NMO).

My Story

In 2020, I was diagnosed with NMO. Weeks later, a life-altering relapse left me partially paralyzed. I had to learn to walk again, and then I ran. Every stride became an act of resistance. Every run, a declaration that this disease would not define me.

Running became my voice. My movement. My purpose.

Why I Run

I run to:

• Raise awareness for NMO and other rare neurological diseases

• Advance advocacy for earlier diagnosis and equitable treatment

• Build a vibrant, inclusive community of hope and support

I’m not running toward a finish line.
I’m running to change the narrative.

Join Me

If my story moves you, I invite you to stand with me:

• Donate to help fund awareness and advocacy efforts

• Share this page to spread the word

• Support the movement so that no one faces a rare disease alone

With heartfelt gratitude,
Marion Jones
The Rare Marathoner | NMO Patient Advocate